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The Quintessential Migraine Ninja: Rosa Sundquist

MigraineNinja200Quite a few of you collaborated with me to put together our Migraine Ninja Oath, and it turned out very well.

Today, I want to introduce you to someone who is the quintessential Migraine Ninja, Rosa Sundquist. It makes me happy to be able to call Rosa my friend. She's a constant source of inspiration to me. She has had such a tremendous struggle with chronic, intractable Migraine, yet she's always hopeful. She never gives up.

I recently published a profile of Rosa on Remedy Health Media's HealthCentral Migraine site. It begins:

Rosa-Dolphin

Rosa Sundquist has had Migraines since she was a teenager. She endured the years 2008 to 2014 while in pain every single day. Still, she never gave up. With hope and determination, she worked with Migraine specialists to find treatments that would give her some relief.

Q: How long have you had Migraines? What’s your diagnosis, and how long did it take for you to get an accurate diagnosis?

Rosa Sundquist (RS): I’ve had Migraines since about the age of 15, perhaps longer. (I’m 55 years old now.) As a child, I had severe digestive issues. In fact, I don’t remember ever not having digestive issues.

I was officially diagnosed with episodic Migraine at the age of 27 and was told to take Motrin or Tylenol. I can’t remember who gave me the diagnosis. I think they were just guessing since my mom and sister also have Migraine disease. (I have family with Migraine on both sides, maternal and paternal.)

In September of 2008, I was diagnosed with chronic Migraine without auraintractable Migrainecervicogenic headaches, and occipital neuralgia. In 2009, hemicrania continua was added to the list of diagnoses, and in 2011, cervical dystonia joined the long list.

I hope you'll consider reading this profile, Rosa Sundquist: A Hopeful and Determined Migraine Patient. Reading more about Rosa is bound to raise your spirit and give you hope. 

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com 
www.migrainedisease.com
www.healthcentralcom/migraine 

     


Migraine Ninjas: Whose Path to Follow?

MigraineNinja200Good afternoon to my extended Migraine family! Cheers to all of you. If you're Migraine-free today, that's fabulous. If you have a Migraine today, I hope you feel better soon. 

At some point, we all choose what path to follow in life. That choice can change many times during our lives. The ups and downs of life often necessitate changing the path we follow, in our personal lives, and in our professional lives. Migraine, especially chronic Migraine, can make it necessary to adjust our paths. Certainly, my path through life has been changed by the impact of Migraine disease.

It's fairly obvious that Migraine can necessitate changes in our career paths. For some time, I'd have said that the changes to my career path were negative because I had to leave a job I enjoyed. Now, however, I wouldn't trade what I do for any other job. My path as it involved volunteer activities definitely changed. After 30 years of volunteering at our local community theatre and other arts activities in our community, my Migraines had me out of commission too often to be a dependable volunteer - or to be able to enjoy it. I'm back to volunteering again, but those activities now center around awareness and advocacy efforts related to Migraine and other Headache disorders. Thanks to my husband and best friend, John, my family path has been the most stable part of my life, despite Migraine. 

The most important thing about my path through life is that it's been MY path. There have been well-meaning people who have thought they knew what was best for me, and had their own ideas on what path I should follow. My mother, for example, had a very clear path all mapped out for me. But it wasn't what I wanted to do with my life, not at all my path. My grandmother wanted me to essentially follow that path she'd followed. Again, it wasn't my path. I chose to follow neither my mother, nor my grandmother. 

It's sometimes tempting to look at the lives of people we know, like what we see, and think we should follow them. The problem with that is that no two people have the same experiences, the same needs, the same feelings. If we follow someone else, what happens to our path?

Own-Path-Quote

Whose path are you following? I hope it's your own.

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com 
www.migrainedisease.com
www.healthcentralcom/migraine 

     


MHAM 30: People with Migraine and Headache Need Access to Better Information

NMAHM2017-200Good morning, and welcome to day #30 of Migraine and Headache Awareness Month (MHAM)!

This is also day #30 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
People with #Migraine and #Headache need access to better information. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: How do you counter bad information that you find online and help others find correct information?

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 29: People offer Migraine and Headache Patients Lots of Advice

NMAHM2017-200Good morning, and welcome to day #29 of Migraine and Headache Awareness Month (MHAM)!

This is also day #29 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
People offer #Migraine & #Headache pts lots of advice, some helpful, some not. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: Please discuss how you handle well-meaning advice that isn’t applicable or helpful to you.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 28: Raising Migraine & Headache Awareness Leads to Increased Research for Better Treatments

NMAHM2017-200Good morning, and welcome to day #28 of Migraine and Headache Awareness Month (MHAM)!

This is also day #28 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
Raising #Migraine & #Headache awareness leads 2 increased research for better treatments. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: Please discuss the need for research into new treatments.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 27: Migraine and Headache Disorders Are Disabling

NMAHM2017-200Good morning, and welcome to day #27 of Migraine and Headache Awareness Month (MHAM)!

This is also day #27 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
#Migraine and #Headache disorders are among the most disabling of all medical conditions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: In what ways have Migraine or Headache disabled you, and how do you combat them?

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 26: Migraine and Other Headache Disorders Aren't "Just a Headache"

NMAHM2017-200Good morning, and welcome to day #26 of Migraine and Headache Awareness Month (MHAM)!

This is also day #26 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
#Migraine and other #Headache disorders aren’t “just a headache.” http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: What words other than “headache” do you think should be used instead of “headache,” and why?

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 25: Migraine and Headache Management Means Different Things

NMAHM2017-200Good morning, and welcome to day #25 of Migraine and Headache Awareness Month (MHAM)!

This is also day #25 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
#Migraine and #Headache management means different things to different people. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: What does Migraine and Headache management mean to you?

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 24: Support is an Integral Part of Migraine and Headache Management

NMAHM2017-200Good morning, and welcome to day #24 of Migraine and Headache Awareness Month (MHAM)!

This is also day #24 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
Support is an integral part of #Migraine and #Headache management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: Please discuss your main source of support and any ways in which you support others.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save


MHAM 23: Migraine and Headache Patients Lose Friendships

NMAHM2017-200Good morning, and welcome to day #23 of Migraine and Headache Awareness Month (MHAM)!

This is also day #23 of the Migraine and Headache Awareness Month Blogging and Social Media Challenge (MHAWSMC). Today's prompt is:

Twitter & Facebook: Copy and paste:
#Migraine and #Headache patients lose friendships because of symptoms. http://poht.info/2qNtzdg #MHAM #MHAMSMC

Bloggers: Share your experience with friendships as a result of Migraine or Headache.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day. Please also post your Twitter ID so we can tag you.

NMAHM2017-SMC-200

You're welcome to use the Awareness Month image above or the Blogging and Social Media Challenge image to the right.

In fact, we hope you will use the images because they add to a unified awareness message. Please use them as is, without making any changes to them.

If you need them in a larger size, please use the email button in the right column of this page to contact us. Tell us what size you need the image to be, and we'll gladly send it to you.

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate

Save

Save